A lot has happened for me in the past year, and not just COVID19! My hair grew back…but like an alien! So, I’m rocking short hair for now, maybe forever! We made a BIG move from Port Washington, New York in the middle of a pandemic and hurricane Isaias! We said some very hard goodbyes …
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HSCT Recovery: Week 4
Did that Turtle really win the race? I know I am only 1 month in, but this HSCT recovery feels like the turtle’s pace, so I’m counting on the story book ending!! Keeping in mind that each little SLOW step is progress! Starting with severe anemia, it has taken me 4 weeks to get back …
Post Mexico: 1 Week
Oct 1, 2019 is officially my New Stem Cell Birthday! Today is only 1 week after completing the 28 Day Treatment in Mexico and returning “home.” I have had a little time to process what all transpired over those 28 days, and thought I would share MY experience with those who might be considering this …
Dr. Update for Friday October 4
Kim has started both daily blood draws (so the doc knows where her counts are at each day) and the second round of daily shots related to the stem cell protocol. Today was the first post stem cell transfusion doctor consult. The tone of the conversation was serious as her reaction to the chemo has …
It’s My Stemmie Birthday!!
At approximately 3:15 pm CST, October 1, 2019, in Monterrey Mexico, with the help of an incredible group of Doctors (hero’s), Nurses (angel’s) and unbelievable support system (warriors) from around the world, I am happy to announce that Kim welcomed into her body approximately 3,000,000 baby stem cells that have no memory of the MS …
Stem Cell Harvest Day
LOOONG day!! First, I went to bed on Saturday feelingconfident and hopeful. Sunday had to finally be the day. Come on stem cells!! I wasn’t only the last in my group, but 2 were going to finish today. If my counts don’t hit the mark, they would have to change to a higher-powered med. I …
Hickman Line & Progress
Well as you see from the photo they have placed the Hickman (corrected term) Line which will be used from here on out to both harvest and transplant the stem cells and also to administer the final two chemo treatments. Although her neck is not that excited, her poor arms are happy that it should …
Rest and Stemmie Days
I’m back! Whew! First off, the care here is over the top, really, white glove service (ha!)! When we arrived we were given a Blue Bag chock full (shoutout to my Aussies!) of meds and a binder with a very detailed schedule tailored just for me. We were also given a White Box full of …
Quick Update #2
We are very thankful she has been cleared to return ‘home’ and continue her protocol. Doctor believes the nausea should subside in next 24 hours, but believes she is improving nicely according to her latest test results. Thank you so much for your response to our requests for prayers. Besides her arms looking like a …
Quick Update
We spent the night at the hospital. We should see the doctor this morning, he is waiting on results of a blood test. She is no longer in pain and slept quite a bit last night. Her main battle is still nausea and a bit anxious to hear from the doctor. Specifically need prayers in …
Kim's HSCT Journey 